People Against Leigh Syndrome (PALS)
Project Summary
People Against Leigh Syndrome (PALS) is a non-profit organization affiliated with UT Health dedicated to supporting Leigh syndrome research and global support for warriors and their families. When approached by the organization to assist, we were more than excited to partner with PALS to deliver a digital experience optimized for accessibility and ease of use, all designed with PALS-specific requirements to maximize usability across devices and ensure ease of access for a worldwide audience.
Services included
- Custom CMS Website:
Fully tailored for PALS, the site allows admins to manage blog posts, warrior testimonials, events, and on-screen content editing with intuitive UX/UI elements for accessibility. - Promotional Materials:
Designed and supplied branded materials, including printed flyers, custom stress balls, pens, bracelets, and banners.
Leigh Syndrome Resources
One of the primary tasks of the website project required the creation of a dedicated resources page to strengthen global connections, giving families access to essential tools and forming a supportive, international community.
Website Overview
The custom-built PALS website includes a dedicated Leigh Syndrome Warriors section, offering families and warriors a platform to share powerful testimonials that not only raise awareness but also foster a supportive community. Developed from scratch, the Warrior Testimonial feature uses a CMS database, enabling PALS staff to log in and easily add new warriors via an on-screen editor without technical barriers, further embodying PALS's mission to educate, support, and unite the Leigh syndrome community.
TRiaLS: FAQ
The TRiaLS (Therapeutic Registry in Leigh Syndrome) FAQ section is a vital resource for understanding the TRiaLS program, which collects data from individuals with Leigh syndrome to drive research advancements. This section addresses common questions about the registry's purpose, data usage, and participant benefits, highlighting how each submission aids global research efforts. For families, caregivers, and researchers, this resource underscores the importance of participation in supporting scientific discovery and potential therapeutic breakthroughs in Leigh syndrome.
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